NPR's Juana Summers tracks the advocacy efforts of husband and wife Brian Wallach and Sandra Abrevaya as they try and change the landscape for ALS patients. A few weeks ago, on a bright spring day ...

Leading ALS advocacy group roiled by infighting over money and priorities. ... Depending upon the outcome, some fear that efforts to provide patient services and, in some cases, ...

These groups are composed of individuals directly affected by ALS and are deeply invested in improving patients’ lives. Their advocacy efforts aim to accelerate the approval of promising treatments.

The ALS Association led the advocacy effort behind The Chris Larkin Act, working alongside legislative champion Rep. Ryan Guillen and advocates across the state to push for this life-changing ...

Klee and Cohen also heralded the efforts of the advocacy community. “ALS advocacy has been strong for quite some time now, and we think it's wonderful,” Klee said.

The Walk to Defeat ALS is the ALS Association’s signature event, with funds raised directly supporting innovative research, care services, and advocacy efforts.

Think of an ALS clock: The day before being diagnosed with ALS, a 35-year-old has a life expectancy of around 40 years. On the day of diagnosis, that suddenly compresses to three or four years.

In this hour of Live at 9: A local couple shares their ALS journey, plus insights from the ALS Association. Midsouth students talk about their award-winning documentaries, and election officials ...

Tributes to Pete Frates are continuing to pour in following his death Monday after an eight-year battle with ALS, showing how the 34-year-old inspiration behind the “Ice Bucket Challenge” was ...

During their visit on Wednesday, Oct. 28, they presented Shah with a certified copy of the ALS Advocacy Day Resolution, which declares the third Wednesday in May each year as ALS Advocacy Day.